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Author Topic: Fibro  (Read 464 times)

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Offline jkw86

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Fibro
« on: November 09, 2013, 08:21:20 AM »
Can you have fibromyalgia without the tender points? I get migrating aches and pains, don't have alot of sleeping problems, have had ibs but not regularly, do have a history of depression and anxiety with lots of physical symptoms. When I explained my symptoms (which is basically migrating aches and pains with some depression) they told me its fibromyalgia. To exercise more?? But each time they've done the tender point test I don't have any? I just didn't know if that had to qualify or if I will get them later. :-0
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Offline jkw86

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Re: Fibro
« Reply #1 on: November 10, 2013, 09:50:49 AM »
Nobody?
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Online NeverAgain2

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Re: Fibro
« Reply #2 on: January 11, 2014, 03:29:50 PM »
Can you have fibromyalgia without the tender points? I get migrating aches and pains, don't have alot of sleeping problems, have had ibs but not regularly, do have a history of depression and anxiety with lots of physical symptoms. When I explained my symptoms (which is basically migrating aches and pains with some depression) they told me its fibromyalgia. To exercise more?? But each time they've done the tender point test I don't have any? I just didn't know if that had to qualify or if I will get them later. :-0

The so-called tender points are nothing more than places in the body where muscles and/or tendons have knotted due to muscular imbalance caused by hypertonic muscles pulling other muscles out of place.  Or at least that is how it was explained to me.  Perhaps the reason you don't have these tender points is because your muscles are not especially chronically tight. 

Then there is the question of accepting Fibro as a real "disease" I posted this on another Fibro post here.  Read it with an open mind...




Fibromyalgia is a "disease" of exclusion.  I put "disease" in quotes, because there is no pathogen or scientifically proven cause to Fibro.  Fibro has existed under various names for as long as people have lived; at one time it was called "Fibrosis", for example, in the early to mid 20th Century.

Critics of this idea will point to scans in the brain which show abnormal activity in the Fibro effected areas of the body, and hold this out that Fibro is an organic disease, but it is well known than all pain originates in the brain. This does not mean the pain is not real, but that the brain is the origin of Fibro. 

Why?

Just as why some people with limb amputations get "phantom limb" pain, (which shows up in the areas of the brain nearest the location of where the amputated limp would be), it is not clearly known.  What is known, however, and has been known but unable to be proven until recently, is that the brain is plastic.  This means that for whatever reason the brain switches on the painful areas, it can also turn the switch off. But... the cause of the switching, be it anxiety/depression and/or daily stresses and the reactions to the same must be addressed, through medication sometimes and always by re-thinking how one reacts and deals and lives --- or chooses not to live-- with that stress and anxiety and/or depression.  This is not an overnight cure, but takes time to change your thinking.  And many Fibro patients have become afraid of their symptoms, and the fear of the symptoms magnifies the symptoms and slowly creates a smaller and smaller life for the person which causes further stress and anxiety. It can be a vicious circle. 

This is a long about way of saying that Fibro can be cured, but it is a journey for the brave.  It can be cured because the symptoms of an anxiety illness, which Fibro most certainly is, was never diagnosed properly.  Wrong dx, wrong cure.   Resuming life, being self-led and not symptom led, changing insecure thoughts (this will never go away) for secure thoughts (the symptoms are distressing; they hurt; but they are not dangerous) and peer support of some type are a few ways to begin the change.  It doe not matter how long you have had it, because you may be "helpless" but not "hopeless". 

I suggest googling Abraham Low MD.  Read and re-read his books.  Participate in Recovery International online or in person, and do not let fear be your jailor.

Been there.

Good luck!
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