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Author Topic: Help I have left arm issues  (Read 950 times)

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Offline matt1990

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Re: Help I have left arm issues
« Reply #15 on: November 12, 2013, 08:07:31 PM »
Thanks I'm more calm now. I'd be fine if I didnt read this from dr. wikipedia. I just feel cheap that this kind of permanent damage could happen from leaning on my elbow. There was never any warning. It freaks me out more because my numbness is constant. According to wikipedia static numbness will likely be permanent. I need my hands for work. I will starve if this doesnt get better. Was your numbness all the time? 

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Prognosis
 
Most patients diagnosed with cubital tunnel syndrome have advanced disease (atrophy, static numbness, weakness) that might reflect permanent nerve damage that will not recover after surgery.[9] When diagnosed prior to atrophy, weakness or static numbness, the disease can be arrested with treatment. Mild and intermittent symptoms often resolve spontaneously.[5


The physical therapist diagnosed me with ulnar neuropathy. Tommorow is the last day of corticosteroids and my fingers and part of the hand are still numb.

He didnt really tell me anything about what to expect or how long. I know you said yours lasted for 7 weeks. I asked him if there was anything I should avoid doing that would make it worse and he said not to do any heavy lifting or repetive movents. That's impossible with me being a welder. Would you be concerned about lifting? Im trying to take it easier but I have to keep working.

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Offline matt1990

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Re: Help I have left arm issues
« Reply #16 on: November 14, 2013, 08:04:38 PM »
flasharoo do you think I will lose my hand?
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Offline flasharoo

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Re: Help I have left arm issues
« Reply #17 on: November 20, 2013, 12:15:18 PM »
No you wont loose your hand buddy !!!

Even the worst case scenarios and i mean worst case scenarios.... meaning the symptoms have to be present for years... muscle wasting will only be noticed in the small finger. i didn't go through the procedure of stereoids or such seeing that i have adverse effects with them such as increased anxiety, restlessness, panic attacks, insomnia, high blood pressure, ear ringing, lost of appetite and weight loss and numerous other ones they opted not to treat me with them ... instead focused on exercises and stretching which i still do on daily basis just to prevent symptoms from coming back.
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Offline matt1990

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Re: Help I have left arm issues
« Reply #18 on: January 13, 2014, 07:21:33 PM »
It's going on 3 months and I'm still having issues with no significant improvement. My 1.5 fingers are numb constantly and recently I have noticed weakness and stiffness in that hand. I'm having trouble working because of tremendous elbow pain. I finally got too see a neurologist on the 9th and had an emg and nerve conduction study. He confirmed it is moderate to sever cubital tunnel and mild carpal tunnel. He is concerned about the weakness he saw in my hand and is sending me to a hand specialist.

 Right now I'm having a hard time getting prompt appointments with dr's. My original nerve study was supposed to be back in November and it got canceled. I did not like them canceling it on me and decided to switch to another hospital which set it back to January 9th. That neurologist said he would make an appointment for me with the hand specialist and I would hear from them by Monday. Well it is Monday and they didn't call.

I'm worried about the weakness and how long this can go on before serious damage is done.
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Offline matt1990

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Re: Help I have left arm issues
« Reply #19 on: January 14, 2014, 08:21:56 PM »
The dr office called today and said they scheduled an appointment with the hand specialist for GUESS WHEN...NEXT MONTH. FEBURARY 19TH!!!!!!!!!!!!!!!!!!!!!?????

SERIOUSLY!?!?!?!?!?!?!!


I am about fed up with how far apart the appointments are being scheduled. Everything I read says prompt treatment for cubital tunnel is required to prevent permanent nerve damage and muscle wasting. The neurologist was very concerned with my muscle wasting and weakness. He said I should see a hand specialist right away and YET HIS OFFICE CANT GET ME IN ANY SOONER THAN NEXT MONTH?? WTF!!!!


How long can I really go before having permanent nerve damage and muscle wasting? 
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Offline flasharoo

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Re: Help I have left arm issues
« Reply #20 on: January 20, 2014, 04:02:12 PM »
Hi Matt

quick question, is it constantly tingling and numb or you only feel the numbness and tingling when you touch something with the fingers e.g brush against a surface ??
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Offline Sunlover

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Re: Help I have left arm issues
« Reply #21 on: January 20, 2014, 04:53:58 PM »
Anyone? Why does it seem nobody here fears they have parkinsons disease? I searched anxiety zone and came up with very few threads. How come everyone with twitching automatically fears MS or ALS but not parkinsons? There are some medications to help parkinsons but it is still a degenerative and terrible disease.

Just curious why I am alone in this fear.

I think it's because the majority of people here are in their 20's and 30's and that is when MS usually is diagnosed. Parkinson's is usually someone 60 plus.     Now ME?  I can worry about EVERYTHING due to being 55.  My old comforting thought of  "Oh I'm too young for that" doesn't ease my health anxiety like it did 20 or 30 years ago.
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Offline matt1990

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Re: Help I have left arm issues
« Reply #22 on: January 20, 2014, 07:53:03 PM »
Hi Matt

quick question, is it constantly tingling and numb or you only feel the numbness and tingling when you touch something with the fingers e.g brush against a surface ??

The severity fluctuates slightly week to week. It's mostly been where my fingers will feel numb and tingly only when I touch something, but when I posted my neurotic post on the 14th the symptoms were at their worst so far and I was having tingly numbness regardless if I touched something or not, pain in my elbow and also a bit trouble moving my pinky. However, during the past few days after that I have actually noticed significant spontaneous improvement in the symptoms! I have feeling back in my fingers and hand. The numbness is still there but are much more mild when I touch something. Waking up this morning the sensations in my left hand were amazing feeling. I do still notice the tingling increases slightly during the day but is much better.

I went to a follow up appointment on the 16th with a doctor and he got me in to see their surgeon today. The surgeon was very informative and not overly biased towards surgery at this point once I pressed him on alternatives. He did inform me surgery is never guaranteed positive results. He checked my feeling with a pin prick test where I had to tell him how many prongs were on my finger without looking. I actually passed this test! He said my physicals look good.

I questioned him about how much more time would it be safe to give this before risking permanent nerve damage or muscle wasting. The response was "you never can know for sure with nerve damage. The nerve has been compressed and once treated it is up to the nerve to heal itself. Even with early surgery there may be some numbness afterwards but generally results are easier to predict with earlier treatment and are usually very good. I wouldn't say hey, lets see you back in 6 months and decide then. This is something you need to take care of relatively soon. I wouldnt be opposed to you having surgery today or giving it another 4 weeks."

I then asked him about the anatomy of my cubital tunnel condition and how surgery would benefit me given that the problem was caused by leaning on my elbow for extended periods of time. I wanted to know since my nerve was irritated by leaning on it, wouldnt theoretically the condition improve on its own without surgery if I stop the aggravating actions? He basically agreed with me and said that it should improve and many people dont get surgery.

So we decided to give it 4 more weeks of conservative treatment and then do a follow up.

I've asked all the doctors about cubital tunnel exercises up to this point and none of them offered any so I havent been doing any. I have been carefully watching my arm position, making sure not to lean on it, wearing a padded brace at night and am taking meloxicam. I asked about exercises or physical therapy to the surgeon and he said I probably would benefit from them. So before I left he had a nurse give a paper on it and show how to do them.

Flasharoo I know you mentioned the exercises. I should have listened to you! I wish the doctors had instructed me to be doing them all along! Today I went on youtube to watch some exercises and there are quite a variety and wonder which ones would be best. Are there any in particular that really helped you? So what is your opinion on my visit with the surgeon and waiting another 4 weeks given the recent improvements? Any other questions I should ask next time?


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Offline flasharoo

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Re: Help I have left arm issues
« Reply #23 on: January 20, 2014, 09:13:42 PM »
Well the surgeon seems to be quite happy with the physical test so far so meaning there is no need for immediate action on it exercise on it's own should help you in due time, also it's a good thing that the numbness and tingling is not present at all times which pretty much means that the nerve has started the repairing process it's self, nerves are very fragile and do take a real real long time to heal.

I remember when i first had it it was 7 weeks of constant numbness and tingling it was hell it took another 6 months for the symptoms to completely vanish, they tried various drugs and creams from the get go but didn't work at all it's also the time when i first discovered PREDNISONE and my god do i regret it i would never ever and i mean ever take that drug, it was a night mare every possible side effect that drug has i had it from anxiety over the roof to stomach cramps to insomnia just to name a few alas it's behind me now ... Back to the topic ... the Numbness and tingling still occurs from time to time especially when i rest my elbow on something a bad habit if you are driving around with your windows down but it disappears as soon as a stretch my hand out. 

However i still keep doing these exercises on daily basis every morning, noon and before bedtime. Without trying to explain i will post a link here under for your reference, you will find the exercises at the bottom of the page, also swimming another thing you should consider trying least once a week purely for the purpose of keeping the strength in your arms.

http://www.physioadvisor.com.au/13913950/ulnar-nerve-compression-physioadvisor.htm

Good Luck.
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