Chat Now!   Member Gallery    Member Articles    Games   Member Groups   Member Blogs   Health News    Bored?

Author Topic: Scared I'm going blind! please help me asap  (Read 1216 times)

0 Members and 1 Guest are viewing this topic.

Offline freakycat

  • Full Member
  • ***
  • Posts: 189
  • Country: us
  • Rec's: 0
  • Gender: Female
  • Mood: Sick
    Sick
  • Personal text
    • Poke This Member
Scared I'm going blind! please help me asap
« on: October 23, 2013, 10:20:00 PM »
i will try to make this as short as possible. almost 2 years ago I had a sudden vision loss. I got scared an thought I was going blind. went to my doctor, and 2 different eye doctors and all said that my eyes were fine. I just needed a stronger lens prescription. Well to this day I STILL fear that im going blind. i see floaters (which yes I know is normal) not worried about those but today I have been seeing things move. like shadows almost. sorry if i sound crazy. and over a year now I googled going blind symptoms and one of them was seeing red. Well turns out one of my friends is going blind in his left eye. and before he found out that he was going blind, he could only see the color red out of his left eye. I was in the shower and I looked down and I saw red. No, not blood. It looked like a reflection. There was nothing red. and now I feel like I'm seeing red everywhere only in my left eye. My left eye is a lot weaker than my right eye. so i feel like i could go blind in it cause it isnt that strong. I'm so scared. I'm 20 and i dont have any eye diseases that run in my family. what if im the first one? or what if i have diabetes and im going blind? diabetes runs in my family. well 4-5 people have it. but my parents dont. im so scared. i dont want to go blind.i close my eyes so i dont have to deal with seeing these things. please help and please tell me that you have seen "red" before.
Bookmark and Share
"Life is really simple, but we insist on making it complicated." - Confucius

Offline freakycat

  • Full Member
  • ***
  • Posts: 189
  • Country: us
  • Rec's: 0
  • Gender: Female
  • Mood: Sick
    Sick
  • Personal text
    • Poke This Member
Re: Scared I'm going blind! please help me asap
« Reply #1 on: October 23, 2013, 10:36:41 PM »
please!!!!! HELP
Bookmark and Share
"Life is really simple, but we insist on making it complicated." - Confucius

Offline BlueCricket

  • Full Member
  • ***
  • Posts: 117
  • Country: us
  • Rec's: 0
  • Gender: Male
  • Mood: Scared
    Scared
  • Personal text
    • Poke This Member
Re: Scared I'm going blind! please help me asap
« Reply #2 on: October 24, 2013, 03:45:33 AM »
I'm pretty sure you're just tricking yourself into seeing this after having heard of what your friend had experienced. It's all in the head... I should actually take my own advice since I am currently stressing about the possibilities of me going blind also. Ugh, anxiety sucks. :/
Bookmark and Share

Offline marc

  • Community Greeter
  • Hero Member
  • *****
  • Posts: 7533
  • Country: us
  • Rec's: 64
  • Gender: Male
  • Mood: Confused
    Confused
    • Poke This Member
Re: Scared I'm going blind! please help me asap
« Reply #3 on: October 24, 2013, 08:08:18 AM »
It may make you feel better to call your Opthamologist and explain your
symptoms and concerns.
Bookmark and Share
If you're going through hell, keep going.
Never, Never, Never, give up.

Offline JunoX

  • No One Rules If No One Obeys
  • Hero Member
  • *****
  • Posts: 1104
  • Country: us
  • Rec's: 17
  • Gender: Female
  • Mood: Grumpy
    Grumpy
  • Where the mind goes, the body follows.
    • Poke This Member
Re: Scared I'm going blind! please help me asap
« Reply #4 on: October 24, 2013, 01:24:28 PM »
You dont suddenly go blind from diabetes. It takes decades of struggling with diabetes before it affects your eyes and it takes even more time before it causes blindness and by time, I mean years. Believe me, if you had diabetes to that point, you would have known by now because you would have had serious medical issues not relating to your eyes. Diabetes is not hard to diagnose.

As far as eye diseases that cause vision loss are concerned, they also take years to get to that point. You would know far in advance that you had a serious eye disease leading to vision loss.

You don't suddenly go blind unless you are in an accident or have some devastating brain injury of some sort. The only conditions that make you temporarily blind, are migraine related and by what your describing, that's exactly what's occurring to you. The sudden vision loses and seeing "shadows" are classic symptoms of ocular migraines. I get them, they have made me blind before but it temporary. Your vision returns even though its incredibly frightening.

Floaters are normal and not indicative of blindness. Just because someone you know has a condition where they only see red light, does not mean that its a precursor to blindness. I am sure many have lost their vision and haven't seen red beforehand. Ocular migraines do cause large floaters of different colors in your vision. I don't believe these are true floaters, they are just a symptom of the migraines. I see blue ones but have also seen purple and red though white is the most common.

Keep in mind, migraine is a neurological condition, benign, but it does not always manifest with pain. Most of my migraines are completely painless. So you don't need to have a headache to have a migraine attack.
Bookmark and Share
The woods are lovely, dark and deep. 
But I have promises to keep, 
And miles to go before I sleep, 
And miles to go before I sleep.
~Robert Frost

Offline Desolations​tate

  • Newbie
  • *
  • Posts: 11
  • Rec's: 0
  • Gender: Male
  • Personal text
    • Poke This Member
Re: Scared I'm going blind! please help me asap
« Reply #5 on: October 24, 2013, 01:35:22 PM »
Something similar was happening to me last week. I'm not old, don't wear glasses, but my left eye is weaker. I started thinking about how bad it would be to only be able to see out of one eye and all the things I could no longer do. So I started closing on e eye to test the vision. And imagining it was getting worse. I had one panic attack when I got a piece if sand in it and it got watery and blurry and I stating thinking that was it. It wasn't though.

Just remember people generally don't go blind. Not unless you get acid in them or something terrible.  I would make sure I wore sunglasses most of the time I was out it the sun and eat a lot of vitamin a to keep you vision strong for years. Otherwise I don't think it anything. Not migraines either. I think it's just your imagination. Remember that and tell yourself that when you start to worry and it should help you get through it.
Bookmark and Share

Offline matt1990

  • Jr. Member
  • **
  • Posts: 75
  • Rec's: 0
  • Personal text
    • Poke This Member
Re: Scared I'm going blind! please help me asap
« Reply #6 on: October 25, 2013, 02:02:44 AM »
Fear of going blind is my specialty which I have dealt with this fear for more than 7 years now. When I was about 16 I started to have vision problems flashes, floaters, visual snow and other strange symptoms such as distorting objects. I was absolutely convinced I was going blind from retinitis pigmentosa.

I remember the summer these vision problems happened. I went to about 10 different eye doctors and all of them said my eyes were healthy. They could not explain what was causing my vision problems.

Years went by and every day I thought about my vision problems. Iwent to the extent of contacting people on 0409 groups who have RP as I was determined to find out if my symptoms were similar to theirs before they were diagnosed. My symptoms didnt match at all but somehow my mind still convinced me I had RP. I was certain it was just too soon for signs of the disease to show up in the retinal exams.

Eventually one of the RP people I had become friends with on 0409 mentioned maybe my symptoms were related to Cone Rod Dystrophy. I googled that and instantly became 99% certain this is the disease I had and was even more terrified then.

After a couple more years going by I accepted the fact that I might go blind by age 30. I tried not to think about the symptoms anymore. For a while my fears had eased but one day they came back and I decided to visit my old eye doc I had been going to 5 years earlier. I told him after all these years I was still very concerned about my vision and that maybe it is CRD. He proceeded to examine my eyes. He sat back and in his gentle ways assured me there are absolutely no signs of a disease, but if it would help ease my mind, he would refer me to a retinal specialist. I agreed and a month later I went to see the retinal specialist.

At the retinal specialist I brought in a power point presentation of my vision problems and showed it to him because nobody could understand all of my vision symptoms. He didnt take it too seriously and then proceeded to examine my eyes. While peering into my eyes he said, "well I do see some retinal changes that resemble RP". I just about died. He finished the exam and told me there wasn't anything he could do. I felt so trapped and hopeless sitting there in the tiny office hearing him say that. He suggested I go to vanderbilt university for an ERG to rule out the disease.

Absolutely mortified I contacted my regular eye dr to tell about the visit to the specialist and he told me that the specialist had called him and said there were no signs of a disease. To this day I have no idea why the specialist told me he thought there were signs of a disease.

I was still worried so my eye dr convinced me to go to vanderbilt and ease my mind by finding out definitively one way or the other. I will never forget the butterflies in my stomach on the drive up to the university. I was examined extensively by two doctors, one who was a vitreoretinal specialist.The dr informed I have no eye disease and for the first time ever, I was given an explanation for the cause of my unusual vision problems. I am very near sighted and have had a lot of vitreous break apart in my eyes (sounds terrible but this is common and is what creates floaters) and this is what causes my vision distortions. For the first time in nearly a decade of worry, I was calm and relieved. Literally felt like a 10 ton weight lifted off my shoulders.

Long story to explain my experience with vision problems. It really had turned into severe HA by focusing on benign symptoms that were really there. The mind is very convincing in manifesting quirks of the body. I occasionally worry what if those dr's are wrong too and they missed something, although not to the same extent as before. 

I think this chronic severe stress affected me in a traumatic way. At times I KNEW my life and independence was going to end in blindness. I am almost completely over the fear of going blind, but now I become terrified of other diseases.

Dont let your worries get out of hand and bother you for such a long time like I did and do trust your doctors.
Bookmark and Share

Offline freakycat

  • Full Member
  • ***
  • Posts: 189
  • Country: us
  • Rec's: 0
  • Gender: Female
  • Mood: Sick
    Sick
  • Personal text
    • Poke This Member
Re: Scared I'm going blind! please help me asap
« Reply #7 on: October 25, 2013, 02:24:32 AM »
Fear of going blind is my specialty which I have dealt with this fear for more than 7 years now. When I was about 16 I started to have vision problems flashes, floaters, visual snow and other strange symptoms such as distorting objects. I was absolutely convinced I was going blind from retinitis pigmentosa.

I remember the summer these vision problems happened. I went to about 10 different eye doctors and all of them said my eyes were healthy. They could not explain what was causing my vision problems.

Years went by and every day I thought about my vision problems. Iwent to the extent of contacting people on 0409 groups who have RP as I was determined to find out if my symptoms were similar to theirs before they were diagnosed. My symptoms didnt match at all but somehow my mind still convinced me I had RP. I was certain it was just too soon for signs of the disease to show up in the retinal exams.

Eventually one of the RP people I had become friends with on 0409 mentioned maybe my symptoms were related to Cone Rod Dystrophy. I googled that and instantly became 99% certain this is the disease I had and was even more terrified then.

After a couple more years going by I accepted the fact that I might go blind by age 30. I tried not to think about the symptoms anymore. For a while my fears had eased but one day they came back and I decided to visit my old eye doc I had been going to 5 years earlier. I told him after all these years I was still very concerned about my vision and that maybe it is CRD. He proceeded to examine my eyes. He sat back and in his gentle ways assured me there are absolutely no signs of a disease, but if it would help ease my mind, he would refer me to a retinal specialist. I agreed and a month later I went to see the retinal specialist.

At the retinal specialist I brought in a power point presentation of my vision problems and showed it to him because nobody could understand all of my vision symptoms. He didnt take it too seriously and then proceeded to examine my eyes. While peering into my eyes he said, "well I do see some retinal changes that resemble RP". I just about died. He finished the exam and told me there wasn't anything he could do. I felt so trapped and hopeless sitting there in the tiny office hearing him say that. He suggested I go to vanderbilt university for an ERG to rule out the disease.

Absolutely mortified I contacted my regular eye dr to tell about the visit to the specialist and he told me that the specialist had called him and said there were no signs of a disease. To this day I have no idea why the specialist told me he thought there were signs of a disease.

I was still worried so my eye dr convinced me to go to vanderbilt and ease my mind by finding out definitively one way or the other. I will never forget the butterflies in my stomach on the drive up to the university. I was examined extensively by two doctors, one who was a vitreoretinal specialist.The dr informed I have no eye disease and for the first time ever, I was given an explanation for the cause of my unusual vision problems. I am very near sighted and have had a lot of vitreous break apart in my eyes (sounds terrible but this is common and is what creates floaters) and this is what causes my vision distortions. For the first time in nearly a decade of worry, I was calm and relieved. Literally felt like a 10 ton weight lifted off my shoulders.

Long story to explain my experience with vision problems. It really had turned into severe HA by focusing on benign symptoms that were really there. The mind is very convincing in manifesting quirks of the body. I occasionally worry what if those dr's are wrong too and they missed something, although not to the same extent as before. 

I think this chronic severe stress affected me in a traumatic way. At times I KNEW my life and independence was going to end in blindness. I am almost completely over the fear of going blind, but now I become terrified of other diseases.

Dont let your worries get out of hand and bother you for such a long time like I did and do trust your doctors.



Thank you so much for sharing your story. My eyes do feel a little better today. So hopefully this HA calms down soon. I'm glad your eyes are okay.
Bookmark and Share
"Life is really simple, but we insist on making it complicated." - Confucius

Offline aroseharmon

  • Just Joined!
  • Posts: 1
  • Rec's: 0
  • Personal text
    • Poke This Member
Re: Scared I'm going blind! please help me asap
« Reply #8 on: October 29, 2013, 10:01:04 PM »
Fear of going blind is my specialty which I have dealt with this fear for more than 7 years now. When I was about 16 I started to have vision problems flashes, floaters, visual snow and other strange symptoms such as distorting objects. I was absolutely convinced I was going blind from retinitis pigmentosa.

I remember the summer these vision problems happened. I went to about 10 different eye doctors and all of them said my eyes were healthy. They could not explain what was causing my vision problems.

Years went by and every day I thought about my vision problems. Iwent to the extent of contacting people on 0409 groups who have RP as I was determined to find out if my symptoms were similar to theirs before they were diagnosed. My symptoms didnt match at all but somehow my mind still convinced me I had RP. I was certain it was just too soon for signs of the disease to show up in the retinal exams.

Eventually one of the RP people I had become friends with on 0409 mentioned maybe my symptoms were related to Cone Rod Dystrophy. I googled that and instantly became 99% certain this is the disease I had and was even more terrified then.

After a couple more years going by I accepted the fact that I might go blind by age 30. I tried not to think about the symptoms anymore. For a while my fears had eased but one day they came back and I decided to visit my old eye doc I had been going to 5 years earlier. I told him after all these years I was still very concerned about my vision and that maybe it is CRD. He proceeded to examine my eyes. He sat back and in his gentle ways assured me there are absolutely no signs of a disease, but if it would help ease my mind, he would refer me to a retinal specialist. I agreed and a month later I went to see the retinal specialist.

At the retinal specialist I brought in a power point presentation of my vision problems and showed it to him because nobody could understand all of my vision symptoms. He didnt take it too seriously and then proceeded to examine my eyes. While peering into my eyes he said, "well I do see some retinal changes that resemble RP". I just about died. He finished the exam and told me there wasn't anything he could do. I felt so trapped and hopeless sitting there in the tiny office hearing him say that. He suggested I go to vanderbilt university for an ERG to rule out the disease.

Absolutely mortified I contacted my regular eye dr to tell about the visit to the specialist and he told me that the specialist had called him and said there were no signs of a disease. To this day I have no idea why the specialist told me he thought there were signs of a disease.

I was still worried so my eye dr convinced me to go to vanderbilt and ease my mind by finding out definitively one way or the other. I will never forget the butterflies in my stomach on the drive up to the university. I was examined extensively by two doctors, one who was a vitreoretinal specialist.The dr informed I have no eye disease and for the first time ever, I was given an explanation for the cause of my unusual vision problems. I am very near sighted and have had a lot of vitreous break apart in my eyes (sounds terrible but this is common and is what creates floaters) and this is what causes my vision distortions. For the first time in nearly a decade of worry, I was calm and relieved. Literally felt like a 10 ton weight lifted off my shoulders.

Long story to explain my experience with vision problems. It really had turned into severe HA by focusing on benign symptoms that were really there. The mind is very convincing in manifesting quirks of the body. I occasionally worry what if those dr's are wrong too and they missed something, although not to the same extent as before. 

I think this chronic severe stress affected me in a traumatic way. At times I KNEW my life and independence was going to end in blindness. I am almost completely over the fear of going blind, but now I become terrified of other diseases.

Dont let your worries get out of hand and bother you for such a long time like I did and do trust your doctors.

Hey there, what exact symptoms were you facing? I feel we have the problem!
Bookmark and Share

Offline matt1990

  • Jr. Member
  • **
  • Posts: 75
  • Rec's: 0
  • Personal text
    • Poke This Member
Re: Scared I'm going blind! please help me asap
« Reply #9 on: October 31, 2013, 02:46:48 AM »
I got visual snow when I was 7 years old which is a constant tv like static in the back ground of my vision. It has never gone away and probably never will. Just like tinnitis, it reminds me I am alive. There are some good simulators of VS. It is worse in dim light or when looking at blank surfaces like a wall. Apparently its pretty common and supposedly benign. I also have flashes of light at night. When I close my eyes it is like a fireworks show. Around 16 I started noticing lots of floaters and fluttering/distorting of straight objects in my periphery. I became super paranoid about my vision at this point and started to think my peripheral vision was going bad, as in it did not seem highly detailed or I couldnt read print with my peripheral vision. Apparently that is just the way peripheral vision is and why we have central vision for fine detail work! I also became aware of the human eye's blind spot. My doctors thought I was crazy when I came in with a piece of paper to draw out the points of my optic blind spots. If you hold out your thumb and look just to the side of it you should see the tip disappear. We all have the blind spots, I was just absolutely convinced mine was getting larger. 
 
The fluttering/distorting was my biggest concern that bothered me on a daily basis, especially when driving. The fact bothers me that I've talked to probably 100 people about this symptom before and have been googling it for 7 years and never found any information about it. The vanderbilt doc explained these distortions are what I am noticing from the uneveness of my viterous as it breaks apart due to the aging process, or in my case, being very nearsighted. Since then there are still days I think well what if they were wrong. For the most part I have been able to move on from the obsessive worrying about my vision.
Bookmark and Share

Offline overthinker93

  • Newbie
  • *
  • Posts: 9
  • Rec's: 0
  • Gender: Male
  • Personal text
    • Poke This Member
Re: Scared I'm going blind! please help me asap
« Reply #10 on: May 30, 2014, 04:17:09 AM »
I know exactly what you mean mine started from just thinking imagine a life without seeing and i would put thoughts in my head like seeing fireworks or someone welding to scare me now i cant get it out of my head can anyone help me
Bookmark and Share

Tags: blind 
 

Related Topics

  Subject / Started by Replies Last post
3 Replies
1248 Views
Last post February 26, 2012, 06:27:40 PM
by DreamsDeciphered
4 Replies
3172 Views
Last post April 24, 2012, 05:58:18 PM
by carbonatedwater
6 Replies
2313 Views
Last post August 05, 2012, 09:28:54 AM
by avianwaif
17 Replies
1040 Views
Last post July 12, 2013, 05:30:10 PM
by JunoX
3 Replies
130 Views
Last post June 01, 2014, 09:52:23 AM
by overthinker93