I've had HA for most of my life. Nowhere near to the extreme it is now though. I found a pimple on my chest a year ago. Skin cancer runs in my family, so I just KNEW that's what was wrong. It would be a first, since I was sure many times before that I had some incurable disease and was wrong. So, I finally got the courage up and went to the dermatologist. Well, I was right. It was cancer. I can't tell you the numbness that goes through you when you hear that. It didn't matter to me that it was the most harmless (well, as much as cancer can be) cancer to have. Superficial Basal Cell Carcinoma. So the doc put me on this cream to stimulate my immune system to kill it instead of surgery.
I got headaches, muscle aches and twitching from the cancer medication. They were pretty bad, so I broke the cardinal rule and Googled the medicine to see if anyone else had the effects. Up pops pages and pages of people (many of the same people over and over) who talked about how the medication destroyed their immune system, had killed "hundreds" (never verified) and anyone who used the cream would die a slow, agonizing death from every autoimmune disease known to man. That was it. My symptoms got worse and I just knew I would be like this for the rest of my life. That's when the depression kicked in. So I made an appointment for a checkup with my GP. He looked up the medication and said to be leery of internet, that sometimes mass hysteria ensues and he said many people who posted once never came back, more than likely because the side effects went away. Only a few people kept up the relentless posts about how everyone who used the medication was going to live out their natural lives in gruesome agony. All my blood work came back normal, but my MRI showed 3 ruptured discs in my back and some stenosis, which he said would explain the weakness in my legs and nerve pain.
The twitching continued so I googled it. Big mistake. What popped up but ALS. That was it. The next month was a blur of getting up at 4:00 a.m. and running around on my heels and then my toes, unscrewing every cap I could find in the house, trying to push against objects to test my arm strength, jumping flat footed up the stairs and the list goes on and on. None of the testing, I might add, did anything to help my ruptured discs. One morning I woke up and I couldn't feel or move my ankle or foot and I was sure the big one had hit. This was it. Clinical weakness. I grabbed my foot and started moving it with my hands and of course the blood painfully rushed back in and I could walk again. It never occurred to me that I slept funny and my leg fell asleep, especially with the nerve problems from the discs. I now have a burning tongue that feels swollen. I've been having a hard time with my "s" words due to the burning tongue and I have tripped up on a few words. I go back and say them fine, but now I've got the bulbar ALS fear.
I've been seeing an herbalist who said its all anxiety related. My mom has Alzheimers, my dad's been dealing with colon and liver cancer, my sister has drug issues, work is extremely stressful and I have tenants who think its fine to party instead of paying their rent. Eviction is extremely hard nowadays. So my stress level is at about a 10 for the last 6 months or so. The herbalist put me on stress herbs, but I developed some welts today, which turned into paranoia about anaphylactic shock, so now I have a new one to obsess over. Add menopause to the mix and I feel like I've become a raging, paranoid crazy woman.