Hi there, new poster here and wanted to write about what was going on with me the past 2-3 months as I am not sure what is causing my symptoms. Is any of this anxiety or panic attacks? My main symptom seems to come on when I'm sitting in a chair or sometimes various other times, like in a food store, at a football game, etc. Places I have NEVER had symptoms before. My main symptom seems to be some sort of light headed feeling, like I am going to faint and it almost seems like some form of weakness. Lately, I've had lack of appetite, weird sleeping patterns (asleep by 9:30pm and awake by 6am -- used to be able to stay up until 1am 3+ months ago and sleep late if needed and takes naps.. something I cannot do at the moment). Bare with me, as this is a bit long..... so here's the story below:
Let me backtrack a little bit to the end of June, when me and 2 of my friends took a road trip and went to Pittsburgh, Cleveland and eventually Detroit for a 5 day weekend. Total driving time was almost 30hrs combined. I was fine at the start of the road trip but during our final destination, while sleeping after going to an outdoor rock and roll festival on a Saturday, I woke up with bad pain in my neck and radiating into my arm. It didn't keep me away from going to the same festival the next day but the drive home was PAINFUL. That same week, I decided to go to my doctor's office and saw a PA who diagnosed me with "cervical somatic dysfunction" basically saying my posture and neck area were no normal. Doctor sent me to physical therapy and I also had allergy testing done that same week as I always suffered from allergies (but never did allergy shots and still not doing them but my dust mite allergy was of course high).
Before I went to physical therapy, my only symptom was just the pain and I was fine going out, staying up late, doing things with friends, etc. As a matter of fact, one day I had a dental crown put in and then went out with friends the same night and ended up driving them home without any issues. I started the first week of physical therapy and felt fine but the pain was obviously still there, and that is what they were trying to work out. During the next week, I started to have "reactions" like I was going to fall backwards or fall sidewise and faint. No, they were not dizzy spells as nothing was spinning. But During certain exercises (rows with a stretch band and also using a hand bike) they were happening.. and sometimes were happening when I was driving (though this has sort of subsided).
I decided to go to my doctor for this and my doctor checked all my vital signs. Blood Pressure was ok, pulse was ok, etc. They decided to draw blood too to determine if I was anemic or was suffering from low blood sugar, etc. Sent me on my way and symptoms continued to happen. Got my lab letter that said my cholesterol was high and my liver enzymes were mildly elevated and wrote to call and come in to discuss. Came in and saw one of the new doctors there, who started to ask me questions about my gall bladder (?) but I told her all my other symptoms and she insisted that I was suffering from anxiety and borderline panic disorder... neither of which I've had a problem with before and none of these symptoms were happening before my road trip. She prescribed me an experimental dose of Xanax and sent me on my way. I have not even taken one still but have the pills if needed.
This doctor had more blood drawn as she was running tests to check me for hepatitis b as it came back positive. In between tests, I continued to have reactions at work, at home, my favorite restaurant, etc. I kept looking up to figure out what was wrong as the first things I kept thinking were brain tumor causing this. I also developed a persistent cough during this time and a few people at work told me I looked like I was going to be sick. I eventually had to work from home due to these issues, until symptoms started to go away. But there was an issue... symptoms were not going away!
After 3 different tests, I was told I had hepatitis B and the last doctor visit, the specialist told me I was getting into recovery phase and my body was trying to clear the virus. However, I still didn't have answers as to what was causing symptoms. I went to a neurologist as many people suggested and the MRI revealed no brain tumors or aneurysms but I did have a "meckel cyst" which the doctor said was so small and not serious, it would cause me no symptoms as it was an "incidental finding" that I don't need to even worry about and just to see him on the follow up appointment in a month. He even suggested I google it to ease my mind as he said it was nothing. I also had an MRI on a lump on my back, which just ended up being a fatty cyst so it was beneign (Thankfully). The neurologist told me I had a vestibular dysfunction which was causing these issues, especially after I told him I sat on the 21st row of MetLife stadium of the top level and held onto my seat like I was fearing for my life before I felt like I was coming out of my seat, sort of like how you feel if you are going to fall out of a roller coaster.... the same seats I've had for 3 years and never had any issues sitting in. He sent me to physical therapy for the vestibular disorder, which honestly has not helped me.
I've also seen a cardiologist, who made me wear a 24 hour holster monitor, had me come in for a stress test and a cardiogram as well. When I initially had the appointment, I told him about the symptoms and he said it sounded like an inner ear issue. He prescribed me Meclizine which I took for 3-4 days in a row but it was seriously knocking me out by 8:30pm (Could this be the reason why my sleeping patterns are different now?). I stopped taking it because I felt it was not helping and my neurologist suggested I stop as it may shut down my inner ear..... btw inner ear MRI was also normal. Cardio results are back tomorrow but the doctor said I did great on the stress test and preliminary results were "good" of the cardiogram.
So now, here I am with all these symptoms and I have no idea why. Is it the Hep B causing it? Could it be my neck didn't heal properly? Is there something else? Is it something in my back which is causing balance problems? I can't even sit in my favorite restaurant without having these symptoms come up for some reason. None of this was happening 3+ months ago. Have I developed some form of anxiety or panic? Of course, every time I have these symptoms, I keep googling to find answers as to what is causing them.
I had a "week vacation" last week which honestly was not a vacation, it was more of health hunt to figure out what was causing my issues, which also included another trip to the dentist to find out I may need a root canal. Unfortunately, I am going to have to tell my job I need to keep working from home until symptoms go away and I can't stand doing this, as I'd actually rather be in the office but right now is not the time to be going in with these symptoms, especially if I drive so much. And of course, every day I feel as if "Am I dying or is there something seriously wrong with me"? Any help or suggestions? Any questions? Sorry if this was posted in the wrong forum and for the length of this post but I wanted to cover everything. What should I do? My next stop is the orthopedic doctor to figure out if there is a back or neck issue causing this.