Glad you found us here . . . I have minor symptom re: the gag reflex when I am at the dentist and even those are quite stressful . . . I can only imagine what your experiences are . . . .I am wondering, and I am not a med professional, but I am wondering whether hypnosis might help you out . . . I have not used hypnosis but a friend did so to stop smoking and it "worked" for her . . . she went to a certified hypnotist (actually one that was also a board certified psychiatrist) because her smoking was intensified by anxiety) and he worked with her over a period of time . . . .the good news is that she was able to quit smoking and has not smoked in years; the semi-good news is that she copes with her anxiety 1,000 times better but similar to me, it is not a perfect solution as we still have episodes or moments of anxiety but definitely not as frequent and usually not as intense . . . .
I am also wondering if during your visits to medical professionals whether you have seen a GI specialist . . . I have issues of anxiety and my GI tract (IBS at times but not to the degree that I had previously thank goodness) and saw a GI specialist who told me that my intestines were rolling around like a roller coaster (and this was on a good day) . . . .after a colonoscopy to verify all was okay, he told me that he could prescribe meds that would manage the symptoms but advised me to deal with the root cause . . . fortunately, I knew what the root cause and trigger was and as I resolved those events the rolling gut improved but, again, if I am in an episode of anxiety, the symptoms return although not as intense as before . . . I only tell you about my symptoms returning not to discourage you but to let you know that my "recovery" is ongoing and not perfect but that it is possible . . .
I am sorry that I cannot provide you with a specific resource but I am wondering whether there is a hospital in your area which is a teaching hospital as they usually have resources or might be able to refer you to another organization or whether there is a national organization with a database of doctors who deal specifically with your issues . . . you will still need to interview any professional to ensure that they have not only specialized training but actual experience . . . .
Although I could not help you directly, please check here often as anyone who is a member of this forum will do their best to give you suggestions and support you . . . .please keep in contact with us as we will do our best to help out . . .take care, and thank you for sharing your experiences with us . . . but there is a path back to a stabilized life . . . KC