Thank you so much for this post! It has helped me understand a lot of the scary symptoms I've been having. Neck, shoulder, jaw pain. Facial numbness has been the worst for me. I have had a pretty good work up with no answers. Maybe this is the answer and I can get some help for it. I've been living terrified for the last 3 months with this and put on xanax to keep me out of the emergency room everyday.