some direction please.

[William]

Hello. I have a D N A dissorder called C M T. My nerves are shot and worse. This C M T makes my feel absolutely horrible. I live in southwest Ohio. I need anxiety medication such as vallium or xanax, or maybe something similar, in order to live half way reasonably. Only a couple of doctors I've seen, after wasting more time with other medications, have written me any vallium, and it was at way to low of a dose as it takes more with me.
This is not a psycological issue, so I don't want to see a psychiatrist for this medicine, if at all possible.
I HAVE NOT BEEN ABLE TO FIND EVEN ONE DOCTOR, WHO WILL PROPERLY TREAT ME, AND WRITE ME THE MEDICINE I NEED AT THE NECESSARY AMOUNT. I GO THROUGH HELL WITHOUT HAVING THE MEDICINE I NEED,
so if anyone can help me find the right doctors for me, or something, suggestions / direction is appreciated. Message me. Thank you. William

[insights]

Hello. I have a D N A dissorder called C M T. My nerves are shot and worse. This C M T makes my feel absolutely horrible. I live in southwest Ohio. I need anxiety medication such as vallium or xanax, or maybe something similar, in order to live half way reasonably. Only a couple of doctors I've seen, after wasting more time with other medications, have written me any vallium, and it was at way to low of a dose as it takes more with me.

Do you have Charcot-Marie-Tooth Disease, William?

What other medications were tried? Antidepressants? What was the outcome?

As for benzodiazepines (BZD), many doctors are wary of prescribing them because of a, misplaced IMHO, concern about dependence. So I'm not surprised that you are having problems getting a prescription for an adequate dose. You might do better with neurologists as they are used to prescribing BZDs in large doses for epilepsy. However, I advise you to try alternative anxiety treatments - antidepressants and/or psychotherapy - first as you will likely have ongoing difficulty getting BZDs.

Ian

[William]

Yes it is Charcot Marie Tooth. It is this that has wrecked my nervous system. I said in my post that this is not a psycological issue, and that is not the type of doctor I should have to see in order to get the medicine I need.  I've tried anti-depressants, and Buspar. They are not for me. I've tried two neurologists so far. Yes I realize doctors are overly concerned with dependancy. My nerve problem is severe far beyond the concern of depenancy. I'd much rather live with potentially that than go through hell without the medicine I need.

[insights]

Yes it is Charcot Marie Tooth. It is this that has wrecked my nervous system. I said in my post that this is not a psycological issue, and that is not the type of doctor I should have to see in order to get the medicine I need.

I disagree. You have mental health issues which are a response to having CMT, not directly caused by it. Your anxiety does need to be treated as a mental disorder. Given the problems you have, and likely will continue to have getting benzodiazepines your best/probably only treatment options are antidepressants, therapy, or both.

I've tried anti-depressants, and Buspar. They are not for me.

Do you recall which antidepressants you've tried? Why are they not for you? Didn't work, too many side-effects, caused problems with the CMT, or the drugs you take for it?

Ian

[William]

I didn't have other medicine when I tried antidepressants, and Buspar. I tried one at a time. I felt the same or worse. I don't have any medicine for this problem. Also, that's twice you've mentioned the two things I've said that I don't need; therapy, and antidepressants.
I don't yet have proper medicine. (See my original post.) If anyone has any useful imformation, proper direction, what doctors, or where, please post here or message me. That would be helpful and appreciated. Thank you.

[insights]

Also, that's twice you've mentioned the two things I've said that I don't need; therapy, and antidepressants.

That's because they are the only viable treatments in the long term. Benzodiazepines while effective, are not because you can't be sure you will get them tomorrow/next week/month/year. You can't even get them now. Sure, stupid policy, but you deal with the world as it is, not how you wish it is.

Ian

[William]

Wow, three times now you've suggested  the two things i've said I don't need. Do not reply to this particular post any further. How are these the ONLY two things that will help? Therapy is not necessary, as this is not a psycological issue. It may seem so to you, but I'm the one with this rarity.  Antidepressants, do nothing if not make me feel worse. Use your head.
Also dealing with the world the way it is means that I have to keep trying to achieve the things I need.
I need intelligent ideas, suggestions. I need to find the right doctors, who will do what's right, for my rare, severe, and urgent, problem. Direction please people. Thank you.

[sohelpless]

William, I think Ian was just trying to help.  You don't need to get testy.  If you are here looking for advice for treatment of CMT, then you need to find a forum that deals with that type of problem.  Most people on this board have anxiety and depression in which psychotherapy and antidepressants are the main course of treatment.  My heart goes out to your for your suffering but I doubt anyone here will be able to help.  The best thing to do is to research doctors in your area that treat the symptoms of your disorder.  Good luck and I will say a prayer for you!

[insights]

If you are here looking for advice for treatment of CMT

William was looking for help for the anxiety resulting from having CMT. It doesn't matter what triggers an anxiety disorder be it a traumatic event, medications like the interferons and interleukins, or the ongoing stress of living with disorders such as CMT, the treatment is the same. Unfortunately, William has gotten into his head that benzodiazepines are the only treatment for what he seems to think is a unique form of anxiety directly caused by CMT nerve damage rather than the stress based anxiety the rest of us have. It isn't and they aren't.

Ian