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Author Topic: as some know my daughter had follow up with rheumy today  (Read 688 times)

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Offline Allochka

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Re: as some know my daughter had follow up with rheumy today
« Reply #10 on: March 01, 2013, 04:15:12 AM »
Lyme is VERY widely spread in the country where I live, because we have many infected ticks here. We don't even consider it as something serious  to worry anymore. I know several people infected with it (some for 10 years at least), my mom also has it. They all have no issues at all.
The key is to have an antiobitics course to kill/weaken the bacteria. Lyme can become nasty over years only if undiagnosed and untreated. But antibiotics do the trick!

Take the meds, and your daughter will be absolutely all right! :yes:
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Offline sixpack

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Re: as some know my daughter had follow up with rheumy today
« Reply #11 on: March 01, 2013, 07:06:51 AM »
Lyme is VERY widely spread in the country where I live, because we have many infected ticks here. We don't even consider it as something serious  to worry anymore. I know several people infected with it (some for 10 years at least), my mom also has it. They all have no issues at all.
The key is to have an antiobitics course to kill/weaken the bacteria. Lyme can become nasty over years only if undiagnosed and untreated. But antibiotics do the trick!

Take the meds, and your daughter will be absolutely all right! :yes:

yep, that's why Lyme was the best of all possible outcomes.    :yes:   so dad and I aren't worried.  she is in good hands with this doc.   

the bigger deal is my girl swallowing the pill.  LOL  last night we had to sprinkle the little granuales over the applesauce.  this morning she was able to swallow it whole.  I am going to have to take to the school nurse today about the pill swallowing issue.

++++++

thanks for the well wishes.   She is doing fine now.  as mentioned, lyme tends to wax and wane with symptoms.  she had that BAD joint/muscle issue stuff in late November and has been fine other than that.   er about a week ago she had tingling behind her knees...... that is it.


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MOST anxiety occurs on a subconscious level.  JUST because you don't feel consciously anxious or had a day or two of calm doesn't mean your mind & body are relaxed.  It can take months of reduced anxiety before a body goes back to a more non-reactive state

Offline beth0277

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Re: as some know my daughter had follow up with rheumy today
« Reply #12 on: March 01, 2013, 08:24:20 AM »
I don't know much about Lyme disease other than I have read that people go a long time without a diagnosis and it can be something that doctors don't test for. Although no one wants to be diagnosed with anything, this is certainly better than the alternative. I hope the course of antibiotics clears things up quickly.
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Offline greend

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Re: as some know my daughter had follow up with rheumy today
« Reply #13 on: March 01, 2013, 09:00:42 AM »
Sixpack, I'm glad your daughter has something treatable.  Yeah! Hope she feels like her old self soon. :happy0151:
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Offline ejmommy

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Re: as some know my daughter had follow up with rheumy today
« Reply #14 on: March 01, 2013, 09:13:50 AM »
Six- Glad they found something treatable. Hopefully she is feeling better soon. Nothing worse than when your kids are sick, you feel so helpless!

On another note, I hope you don't mind my asking but how would you say you differentiated your daughters symptoms from anxiety? I ask because it seems these lyme symptoms can be similar to anxiety and wax and wane in a similar way too.

I'm currently moving on from my MS fear to chronic Lyme fear  ::) I have been tested and my ELISA and Western Blot came back completely negative (not one band reacted) but to be on the Lyme boards they say if those tests are negative it means nothing and you need to go to this special lab and a special doctor. But to be honest it seems like everyone who goes that route gets diagnosed. I never see anyone say they did that and were told no they didn't have it. .

So I'm a bit skeptical of that. On the other hand, I fear I have this chronic Lyme and it is causing more issues the longer I let it go! I thought I would ask you since you have first hand experience now with your daughter, and also your friend who you said is stage 3. Did she test positive on the regular test?

Ugh. I swear if it's not one thing it's another with me. I hope I'm being irrational. Going to a Lyme specialist for me would be a 4 hour drive each way and paying out of pocket for tests and treatment. Don't want to waste money I don't have, but don't want to get sicker  :(
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Offline sixpack

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Re: as some know my daughter had follow up with rheumy today
« Reply #15 on: March 01, 2013, 12:11:32 PM »
ejmommy

I don't mind you asking at all....

FIRST I will say----and some won't like what I'll say  :winking0008:  BUT.......   I find that not everyone who has anxiety or health anxiety can readily admit it and join an anxiety forum.  Further I will say that some of these same peeps become so convinced they have a seizure disorder or heart ailment or lyme that they will join forums that pertain to that issue.  Then they'll find ANY thing out there that will bolster their point of view.  AND I will say everybody loves a good conspiracy  :winking0008:     What I find interesting about the "lyme people" is that it is very convienent that only certain labs or doctors can readily or accuarately dx lyme's disease.  I wonder what kind of financial stake the labs that are soooo good with lyme with the special test have.  AND, like you said, everybody on those forums seems to "go that route" end up with lyme....  so, yeah mighty skeptical my ownself.   I did speak to my daughter's rheumy about "other" lyme tests and another lab out in california (one I heard of specifically) being more accurate or what have you.  She looked at me perplexed saying, " I don't know about any other tests.  all of the rheumy's I know and rheumy's as a whole use these two tests.  I also go by other blood tests that show inflammation."  She did tell me that dx'ing lyme's is always a vague endeavor.   Today I was having some bloodwork done to recheck my cholesterol.  the blood drawer guy that drew my blood had drawn my daughter's back in November (not the ones on monday that tested the lymes).  He told me that he drew blood on another child the other day that tested +.  He also stated that the rhuemy in the same medical complex that the lab he worked in sends people over all the time that test positive for lymes.   I told him about my daughter's bloodwork in November and the things that came back elevated.  He piped in, "yeah that is very suggestive of lymes"....

 So I'll say------ it is always a dicey proposition looking on other disease forums.  YOu could well find yourself in a den of lions.   :winking0008:   

Anyway---done with my anti lyme conspiratory theories...   ;D

Now how did I differentiate between anxiety and lyme with my daughter?  Well anxiety NEVER was a consideration.  she doesn't have an anxiety disorder.  My daughter sometimes seeks attention so I had to look at that.  But my first thought back in November when she started complaining about her muscles and joints was "growing pains".  I watched her for a week.  It was obvious this wasn't it.  I mean she was hardly walking. A couple of nights she told me that she would wake and be unable to move her leg.  She was running low grade temp that week too.  Then for a day it got better.  She even played WII.  the next morning she came to my bedroom with her arms out bawling saying her wrists hurt.  I had her take a bath hoping the warmth would help.  She called me into the bathroom saying she couldn't get out of the tub as it hurt too much.  I ended up taking her to the pediatrician.

here is  the link when I talked about her aches/pains and doc

http://www.anxietyzone.com/index.php/topic,63485.msg366702.html#msg366702

Anyway:  on the 1/23 we went to the rheumy for the first time.  she said that overall she was pretty "boring" but the tests that were a bit abnormal had her a bit concerned.  that anytime she's seen that something was going on.  So orders were  1. go to opthamologist because RA in kids will show in eyes.  2. if she has another "Pain" day to call and bring her in right away.  3. ordered repeat of november labs PLUS a bunch more. 4. do the labs a few days before her followup appt unless she has a "pain" day, then do labs that day.


Sooooo blathering, blathering...... 

ejmommy...  imo, it is unlikely you have "chronic lyme".  I know about all those other forums, but again I am dubious with all that.   others can fuss if they want.  but that is what I think. 

I do have a friend that was dx'd with Stage 3 lyme disease.   she was just dx'd this year---IDK maybe by that special lab.  BUT she was bitten by a tick in 2001.  she has had SEVERE pain to the point that she can't work.  a few years back she was dx'd with MS then "undx'd"  then she had fibro.....  she was on pain meds to the point that she needed rehab..............   so that is her lyme story......


if you have any other questions with my immense knowledge on the subject  ::) :winking0008:, let me know......................   the only thing now is that since I spend tons more time in the woods than my kids, maybe I should be tested.

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MOST anxiety occurs on a subconscious level.  JUST because you don't feel consciously anxious or had a day or two of calm doesn't mean your mind & body are relaxed.  It can take months of reduced anxiety before a body goes back to a more non-reactive state

Offline LindaRK

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Re: as some know my daughter had follow up with rheumy today
« Reply #16 on: March 01, 2013, 12:23:32 PM »
Glad you got a definitive diagnosis and she's being treated.  I would like to offer one suggestion though .... get her on a probiotic (few hours before or after her meds).

My hubby has been tested positive for Lyme's probably 5-6 over the last 25 years.  We, too, live in a tick-infested area (deer love our yard).  Generally, when a family member gets an imbedded tick, we take it out, put it in the freezer, make an appointment at the lab down the hill and get the tick tested for Lyme's and whether it's a female or not.  Then, it's antibiotic time.  Every single time hubby has been on the meds (most of the time doxycycline), there was lots of diarrhea UNTIL he started on probiotics.  It was no problem after that.  Not sure if she's experiencing this, but if so - try the probiotics.  Heaven forbid the doc would tell us that.
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Offline sixpack

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Re: as some know my daughter had follow up with rheumy today
« Reply #17 on: March 01, 2013, 12:42:13 PM »
I got the yogurt with probiotics in it.  hate for the poor thing to have to choke down more pills.  LOL.

she is on 500mg X3 of amoxicillin.   if that doesn't do the job, doc will try something else I suppose.  she gets retested in a month.
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MOST anxiety occurs on a subconscious level.  JUST because you don't feel consciously anxious or had a day or two of calm doesn't mean your mind & body are relaxed.  It can take months of reduced anxiety before a body goes back to a more non-reactive state

Offline trainwreck

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Re: as some know my daughter had follow up with rheumy today
« Reply #18 on: March 01, 2013, 12:47:06 PM »
Sounds like she is in good hands! 
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Offline LindaRK

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Re: as some know my daughter had follow up with rheumy today
« Reply #19 on: March 02, 2013, 03:36:57 PM »
Sixpack - there are chewable acidiophilus tablets - strawberry and blueberry.  They taste good.  You can get them at the health food store for about $5.
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