I;d like to share my story, in 2007 I started the trek to the doctors office with every known disease possible, of course nothing was shown to be there,, but as time went on, and the symptoms got more bizarre I was admitted to a local hospital where it was determined I had somotoform disorder, which a short stay in the mental ward would cure, I was sure I was nuts that I let them admit me, it was obvious to the staff there was somethng worng and that I wasent crazy,, but they coudnt do anything,
Up to about 2008, I see a immunologist who did some testing on me and found me to have a immune deficiency, that would explain the multiple sinus infectioons,, so now we do IVIG, it quieted the infections but now I;m starting to suffer cold hands, nu,b hands numb feet,, cold intolerance heat intolerance, neuro after neuro,, who all do there stupid test,, EMG studies which show normal,, then one bright one decided to do a punch biopsy,, aha,, it comes back Small fiber neuropathy,, so now were off to see a rheummy who after seeing the dry eyes,, dry mouth,, decides that I have Sjogrens syndrome,, now I have two camps,, one says I need to be put away and another one saying this guy is sick,, so now a MRI reveals a Chiari malformation, more studies do show a reduced flow of spinal fluid,, they suggest surgery,, and like a fool I oblige,, 2 weeks of livng hell results in a spinal fluid leak out of my neck, back to surgery after I get bacterial menigitis, so off to the Mayo clinic to try and determine why I have this neuropathy,, no reason is found but lip biopsy show chronic inflmation of hte salivary glands, this was noted on two other lip biopsys, I keep telling my ENT about this because the glands are only putting out pus,, he ignores it and continues to operate on my sinuses,, 6 surgerys later, my sinuses are gutted,, of course anything else thats going on is strictly anxiety,, which gets me up to about now,, here I am ready to seee the ENT about getting the paratoid glands removed,, my Gastro did some blood work and my immune syatem is tanked again,, more sinus infections,, MRSA,, Fungal and alot of other bugs I cant even pronounce, my legs and arms are useless,, I can walk about 10 feet without falling,, I am sure my spine is compressed, when I stnad up the legs and arms go numb, the bowels leak out stool but no one takes any of this seriously, my GP gave up on me,, I cant drive anymore, I cant feel the pedals, my poor wife thinks everything is rosy,, and that one day all this will be behind us,, I feel sorry for her, shes losing her husband but refuses to see it,, I cant eat withut choking,, and yet there are some that are convinced that is fibro,, CFS, you name it,, but its hard to convince htem when bloodwork is normal, but when you dig a bit deeper,, the signs start to show up,, its just a matter of time before what ever this is kills me,, so all I am saying that anxiety is NOT the cause sometimes of a lot of problems,, take it from someone thats been down that road,, oh,, when I have ben in the hoospital, al you ear is,, have you moved your bowels today,, it got and is to the point that i show htem my underwear where I had stol leak out,, idiots,, every one of them idiots,, they dont listen,, and refuse to treat anythng,, I hope there happy,, they killled a good man and father,, all because they would not listen, I live in Pittsburgh and Have UPMC insurance,, if you have it,, good luck,, they call it Life changing Medicine,, it sure is,, it changed mine,and not for hte good thats for sure,,