Okay, so it has been about 6-8 weeks since I was told that I had Fibro, and have been researching as much as possible to get a better understanding. In doing this research, I have realised that I have had this for about 10 years and it has not been a sudden diagnosis as I first thought. Since going to different doctors, with different symptoms I guess it went undetected, but this doctor asked the right questions which put all the previous symptoms together, such as restless sleep, constant tiredness, headaches, tingles in arms, swelling of limbs, numbness in face, constant pain and tension in upper back and across shoulders and neck. The list can go on and on.
I have had good discussions with my chiro, who's wife also has this, so he really understands what I am going through, especially with his treatment of me, as he cannot touch my upper limbs without me wanting to punch out at something with the slightest touch.... extemely excrutiating....! In his talks, he has advised that there is research where it can be hereditary (my mum has this too), an after effect of a major illness or shock (I had meningo-encephalitis 12 years ago where I lost my sight for 6 months).... He also advised me to try to stay off wheat or dairy as this could trigger symptoms.... The meds I am on (Endep10) has not really worked for pain and fatigue, however I am only waking up about 5 times a night instead of 20, so I at least wake up thinking I have slept better..., but when I wake, it takes me an 1 hr 1/2 of hitting snooze, to feel alert enough to get out of bed.
Has anyone else heard about the wheat/dairy factor, or are there med's better than Endep which helps you sleep and wake up without feeling like you have a hangover every morning....? Has anyone gone to discussion groups in person - does this help to mull it over with someone? I am feeling a little overwhelmed and isolated here - and although I am a private person, whenever I have tried to talk about this with friends, I feel that they don't fully understand what's going on, but that I am just being lazy and not wanting to do anything? I don't go out as often as I once did, due to the constant fatigue I feel.... I sleep most weekends to get over the hectic working week to get my energy back to survive the next week as I don't want this hindering my work. I am feeling extremely frustrated with myself and wanna give myself a good kick up the butt for letting it get to me.... Please help with some advice, or feedback...... I would be extremely grateful to hear from anyone.... :)