sleep apnea anyone?

[fubar]

Anyone here wake up gasping for air, I have, 3 times last night, I'm so tired but afraid to go to sleep.  This too can be caused by neurological disorders, i don't know guys, I think I'm doomed, there is a little voice inside my head, saying, Jennnnn, you know there is something wrong, but your too afraid to find out.  Should I press for the cervical MRI and LP, or do you think that after 6 years of these symptoms, if it was MS, the brain MRI would have showed it?  HELP ME OUT HERE GUYS, I"M SCARED!!!!!!!!!!

[roll em]

Fubar

Read your posts at the dreaded Med Help and hope you are ok

I think, honestly, that you should go and get them done. Not because I think youve got MS, Im no doctor but from all the reading ive done on it you would either have a positive MRI or other symptoms by now. The thing with MS (and this is my MS neuro speaking) in the VAST majority of cases they will identify a problem from exam on its own. The normal MRI only strenghens the case.

So the fact you have both on your side tells you in all probability its not MS. I know you have symptoms, we all do, and thats the worst cause we can get tests and they dont necessarily go away. Ive got the same symptoms as you, also tingling and constantly lightheaded/tired. But all these could be anything which leads me onto why you should get the tests done


I think there comes a point where somebody worries so much that no matter what is said they will continue to think about their symptoms/illness etc constantly. Once you are there the only way to deal is to either

stop thinking/worrying about it (pretty impossible)   or
go get the tests done- get the results- which will allow you to move on and say to yourself with confidence that your ok.

I think unless you break this cycle you will continually go round and round worrying and not get the answers.

If it helps--i'm in the same boat. My neuro said similar to me and after thinking about it he's right.

So going for MRI today-- I feel good about it cause i'm taking a step towards getting better as was going round in circles

take care and let us know how you do

Roll em

 

[fubar]

Roll em, are you having the brain Mri or spinal MRI, or both?  I don't think I have MS either, but you know there is always that little voice in the back of your mind.  I just wish I could understand why I have these crawling, tickling sensations all the time, its only with clothes on, bedsheets don't bother me, its the only symptoms that I really have. 

[roll em]

Brain only- had two Neuro exams both normal. MS Neuro doesnt think spine necessary.

I can see the arguement against this but majority of myelin is in the brain and most of my symptoms are 'brain' related so I'll get this done and hopefully move on from MS.

Bearing in mind where your thoughts are though- if your not moving on get them all done. It will help you put it to bed that you dont have it

I get the same as you skin itchiness, but not with sheets. Its a huge stress/anxiety symptom, the trick is weve got to accept its anxiety in our minds first, only then have these symptoms got a chance of going away.

Roll Em   

[fubar]

Roll em, I wish you lots of luck today with your MRI.

[Parrotsmuggler]

  I just wish I could understand why I have these crawling, tickling sensations all the time, its only with clothes on, bedsheets don't bother me 

What you just wrote reveals a lot. Neurons don't care whether they are being stimulated by the cloth of a sheet or the cloth of a t-shirt or pair of pants..all they know is that they are being stimulated and they pass this message on to the spinal cord (or directly to the brain, depending on the stimulus/area being stimulated), which then relays the info to the appropriate structure in the brain. What happens in MS is that the lesions prevent the normal relay of information and you end up getting tingling/burning/pain sensations when certain parts of the body are stimulated.

Let's say that you did have MS. You have a lesion in your spinal cord that's causing a tickling sensation in your right thigh whenever you're wearing pants. But what about when a sheet is touching the exact same part of your leg, stimulating the very same sensory neurons? Why wouldn't the sensory neurons fire and cause the same tickling sensation? The answer is that they would.

An example (kind of a stupid one, but it gets the point across  )...a man goes to the doctor, complaining that his right forearm hurts whenever he lifts his backpack, which weighs approximately 30 pounds. The man has health anxiety and is convinced that there must be a hairline fracture somewhere in his lower arm. The doctor is perceptive, and after skim reading through the patient's jacket, comes to the conclusion that the patient is a hypochondriac. The doc asks the man about his daily activities and finds out that the patient works in construction. He asks the patient "doesn't your arm hurt when you lift heavy blocks of cement or whatever," to which the patients answers no. This confirms the doc's belief that the patient is simply suffering from health anxiety because from a physiological point of view, it doesn't make sense for a person with a broken arm to experience pain when lifting a 30 Ib. backpack, but not when lifting a 30 Ib. block of cement.

From the point of view of MS, your symptoms don't make sense. However, they do make sense from a psychological point of view. So try to rest easy 

[fubar]

Parrotsmuggler, you are definently a thinker, for sure.  It really makes sense when you put it that way.  I think its because when I go to bed, I'm more relaxed, the bedsheets are heavy (with the quilt on), and whats really weird is that if I feel these feelings on my legs or back, when I apply pressure, or pull clothing away from it, it stops.  I went to a pain clinic today, got 9 trigger poiont injections, the doc there feels that its a combo of migraine symptoms/anxiety, to find out whats going on with my neck, I'm having a cervical MRI on Friday, please, say a prayer, I need them!!!! Thanks, Jen

[Parrotsmuggler]

A few weeks ago I actually had to remind myself of what I just posted. I had a burning sensation in both feet whenever I wore shoes. Although this symptom has improved slightly, it's still bothersome. Anyways, when I started to think about the symptom the way a neurologist or physiologist would, I realized that it didn't make much sense. When you're wearing shoes and walking around, the sensory neurons in the bottoms of your feet are stimulated. But what about when walking barefoot? Aren't those same neurons stimulated? Why would wearing shoes make any difference whatsoever if the problem were neurological?The obvious answer is that wearing shoes wouldn't make any difference. Now the burning could be due to poor circulation; given the facts, that explanation does make sense. But a circulatory disorder doesn't scare me nearly as much as a neurological disorder! I'll take poor circulation over MS any day of the week.

[roll em]

Fubar

Good luck with your MRI you'll be fine.

Roll em

[Parrotsmuggler]

Yes, good luck! From what you've posted, it doesn't sound like you have anything to worry about. I've read 100s of MS stories and I have never read of MS starting with symptoms such as those that you've described.